By accessing the data, the user agrees to the following terms and conditions defined by the Steering committee [A few words about the SC].

1. Data is only to be used for clinical purposes.

2. Users should not copy or store multiple variant frequencies

3. Access is only given to variant frequency. Underlying individual data will not be accessible, even upon request

4. Users are limited to accessing XX variant pages per 24hrs period. If users need to access more than the allotted variant pages per day, the user should contact us (link) and detail the reasons for their extensive use of the database. The user’s request will be reviewed and the decision will be communicated over email.

5. The data may not be used in an attempt to identify any individual in this or other studies.

6. We request that any use of data obtained from the IBVL browser cite the IBVL flagship paper. There is no need to include us as authors on your manuscript, unless we contributed specific advice or analysis for your work.

Terms of Use for the IBVL are described in our Terms of Reference document